Monday, January 31, 2011
I've been doing some research online. Probably a bad thing because I became very emotional today and was a total mess. I got nothing done. I had no energy to do anything. I cried. Why Baby Q? Why us?
Some research helped me form about 800 (ok, I'm exaggerating) questions for the doctor appointments next week. I've been writing them down so I don't forget what I want to ask. I also wanted to be well informed before walking into the follow-up.
Today I learned that Laryngomalacia:
- Starts at about 4 to 6 weeks of life after a baby is born.
- Occurs when the child is breathing in.
- Becomes worse with crying, upper respiratory tract infections, laying in the supine (on back) position (doctors may recommend that babies with laryngomalacia be placed on their stomachs to sleep instead of their backs, as long as the bedding is not soft.)
- Usually gets worse before it gets better
- Child may have retractions (sucking in of the skin above or below the ribs when breathing in) (Quentin does have this).
- There is no cyanosis (blue color of the skin)
- The baby is otherwise happy and thriving (Happy yes, but Quentin needs to gain weight).
- Some parents have found that cool visit from a vaporizer helps eases the child's noisy breathing. (I will dig out the vaporizer we have in the storage room and put it in Q's room).
- Children with laryngomalacia will do better at a 30 degree angle, or by positioning their heads to relieve or reduce the obstruction. The child should also be held in an upright position for 30 minutes after feeding and never fed lying down.
- Crying exacerbates the obstruction and work of breathing; a pacifier may be useful to calm an agitated infant.
This is a start. At least there is information out there to help me understand better and make Quentin feel as comfortable as possible. I joined a support group for parents who have children with Laryngomalacia. I haven't written anything on the boards/threads, but maybe I will soon. I had a long chat today on the phone with a friend of mine who has a son 4 days younger than Mackenzie, who is going through the same thing, except her son was misdiagnosed until the age of 11 months, and she is dealing with an entire whole net set of issues because he was diagnosed late. At 2 and a half her son is still on formula (liquid diet pretty much) because he won't eat solids. He associates it with vomiting and gagging. She's working with people to train/teach her son how to eat. She told me that I should be glad they diagnosed Quentin at such a young age. I hope to avoid any further problems like she is going through. I also had a long chat with a friend of mine, (that my engagement ring actually comes from - he's a diamond seller), and his daughter has been living most of her life (she's just over 18 months) at the Children's Hospital. He'll actually be there next week during one of Quentin's appointments, so I am going to meet up with him for a bit, but he has seen all the doctors I will be seeing, and he was talking about the hospital to me. It felt reassuring. His daughter actually hasn't been diagnosed with something specific as they are not sure what is actually wrong with her, but she has major stomach issues and has a permanent feeding tube. I ran into him once since he moved to my neighborhood when we were both in the pharmacy parking lot. I was coming and he was going. It would be nice to catch up and meet his daughter.
Then late afternoon, the mailman actually showed up with our mail. To my surprise (I had totally forgotten that I signed up last year for the Tanis Fiber Arts Sock Club for 2011), there was yarn in my mailbox.
Sunday, January 30, 2011
In the last couple of days, Mack turned 136 weeks old (Thursdays, January 27th), Sean turned 49 months old (Friday, January 28th) and Quentin is two months old today (Sunday, January 30th)
I don't even know where to begin the story of the last couple of days, besides starting at the beginning. Thursday started out as a normal day. Quentin and I met some new friends in the morning, at a mom & tot group that a friend of mine is a part of. The babies/kids are of all ages. My friend who introduced me to this group has a son 2 months younger than Mackenzie and is due around Mother's Day with her 2nd son. We met in Mack's swimming class when Mack was little. We kept making sure we were in the same swimming class, so we had someone we knew to do it with. It was nice to be invited out and made some new friends that morning.
Then, we ran home, and the Welcome Wagon brought us a nice basket for Quentin's arrival. We chatted with the lady who came to bring the basket for a bit, and then when she left, we headed to my OB check-up. I went to that, which was quick & easy and then headed in the city. I went to a mall close to Quentin's doctor's office, and picked up a sandwich to eat (which later I was glad to have done) and then ran to Quentin's 2 month check-up. We saw Quentin's doctor. He is now 7 lbs 10 oz (3450g or 3.45 kg) and dropped just below the 3rd percentile, which was a bit of a concern to our doctor. He is gaining weight, but not fast enough. He's supposed to be gaining at least 20-25+ g per day on average and he had a week where he was only gaining 15g per day, which she didn't like, the following week it was 31g per day, but if you average out those 3 weeks, it brings you to only 20g per day, and this past week he only gained also 20g per day, and because he was premature she would like him to gain more than the 20g minimum per day. So his slow weight gain has been a concern. I had her look at his chest/breathing because I was not happy with it, and neither was she.I mentioned that he sounded like he was "squeaking" when he was breathing. So after giving Quentin his 2 month vaccines, she sent us to the Montreal Children's Hospital. I was not prepared for that, at all.
So we go there just before 5pm. There was a panic with parking because I couldn't find money that I knew I had on me, so I had to leave my keys. We were taken right away because the Montreal Children's Hospital takes breathing issues with babies seriously, and as well, they don't put newborns in the waiting room at emergency. So we sat... and waited. We told our story about 8 times to different people. I kept wanting to scream out "I already told the last person, can you read the chart?"
Quentin was a really big trooper. The poked & prodded and took blood, took x-rays as well, and he was an angel. He never said boo. He was so good. The nurses were in love with him. They all wanted to be the one who took his bloods or gave his sugar water while the other nurse was taking his blood, to distract him.
And he just wanted to be held by mommy and didn't say boo.
We sat in Emergency all night. At one point there was a shift change and less staff on call, so they moved us to an observation room. I cried. I held Quentin. At calm moments I was able to cast on another Pompom Bear Hat, and knit. (Read below for rest of the story).
We had a lot of waiting to do - so I was able in 2 evenings start & finish the hat.
And since we had a lot of waiting to do - I was able in 2 evenings start & finish the hat. It's the exact same specs as the last one I knit (last week was it?) except, I used 5.0mm (US8) needles this time, and knit to 5.5" tall instead of 6" as the pattern calls for the smallest size. The specs are here. I even used the same yarn (Malabrigo Worsted in Emerald) as the previous hat.
I even had one of the nurses help me find cardboard (from Enfamil's sterilized water) so that I can make pompoms since I didn't have a pompom maker. Trying to be creative! I used a Penaten Cream jar to make the large circle and then a keyring from my keychain to make the middle circle and baby scissors from Quentin's diaper bag to cut it all. I was being resourceful. It worked.
So back to the story of why we were at the Children's hospital...
In the morning, we were brought up to the ENT department. We were seen within a few minutes. They took a history (yet again, probably the 10th time I had given it) and decided to do a scope using a fiberoptic laryngoscope. They put a liquid down his nose to "numb" it, and put the tiny tube up his nose and into his throat. I had to hold him down while doing this, and needed Jamie to hold his hands while I held his head straight. It killed me to do so. He did not like it one bit, but was a trooper.
Immediately it was discovered that Quentin has a condition called Laryngomalacia. I asked, and it's not because he was premature. 2% of all babies born have it. Laryngomalacia is (quoted from here) the most common cause of "noisy breathing" in babies after the newborn period. This disorder may become obvious as early as the first two weeks of life, with noisy, raspy breathing while taking a breath in . At first the noise simply sounds like nasal congestion, but it occurs without nasal secretions. This type of "noisy breathing" is known as stridor and has a high pitched, harsh quality. The stridor is usually absent with the child is at rest and becomes more prominent when the infant is lying on his/her back, crying, feeding,excited or has a cold. The stridor usually is at it’s worst around six months and then gradually improves. Most children are symptom free by 24 months. The ENT we saw though, told us 99% of cases the child outgrows it by the age of 4 or 5 years old. The cause of laryngomalacia is not clearly understood. What is known about the condition is that the epiglottits which protects the airway when the child feeds also partially obstructs the airway during breathing. The partial obstruction is the source of "noise" with breathing. Treatment is simple but nerve-racking -- waiting for the child to out grow the condition while explaining to family, friends, and passerbys that there is really nothing wrong with your noisy breathing baby. It is rare that this abnormality causes any serious problems. The stress is on the parent listening to this noisy breathing as the infant is experiencing little problems. In time, the cartilage that supports tissues around the throat and airway become stronger which helps resolve the problem. The other 1% will require surgery to "shave" the cartilage so it doesn't obstruct the airway.
We shared a room Friday night to Saturday with a 4 week old baby whose mother left him there with his useless father. The baby cried all night long (Quentin was an angel and slept) and the father had no idea how to comfort the baby. He even had to call a nurse to help him change the baby's diaper. Quentin of course slept through this baby's wails, but I couldn't get much sleep. Jamie had brought me my thank you cards to write, so once I had finished Quentin's pompom hat, I worked on all my thank you cards since Quentin's arrival. Now I just need to wait for some wallet size photos I made to go in the cards, and will send those off as soon as possible. It felt good at least to get that accomplished while I was in the hospital.
this is how you pronounce Laryngomalacia or if not, it's "luh-RING-go-muh-LA-shuh"). Surgery is still not ruled out yet, it is a possibility that he might need surgery. When we were at the hospital the doctor said that it wasn't clear cut yes he needed it and it wasn't a clear cut no either. We were given a prescription for Zantac as acid reflux is a common irritant to Laryngomalacia, and this way, we can protect the airway from it. (Quentin doesn't have acid reflux, but it's a preventative in case he develops it). I will call Monday to book those follow up appointments and we'll go from there. Treatment is up in the air. I'll know more within the next 2 ish weeks.
I don't even know if I am missing any of the story. I feel like I've gotten it all written out in this post. If I think of anything to add, I will. Dear Readers, any of you had Laryngomalacia yourself? Have a child who had it or has it? I'm looking for people to talk to. I would really appreciate any info you have on it, if you are a nurse or doctor yourself.
Wednesday, January 26, 2011
Three boys. We're now 8 weeks into Quentin's arrival, and we're still working out the kinks of life with 3 kids. I'm thinking that maybe things will start to smooth out once Quentin starts sleeping through the night. Besides those freak few nights where he has actually slept through the night, last night he let me sleep from somewhere around 3:30 am until just after 8 am this morning. It's a start. Longer stretches than 2-3 hours is much appreciated. I really feel like a walking zombie, and it's affecting my mood. I think the sleep deprivation is horrible, and while some days I can nap during the day, other days I cannot (as there are too much to do). Alas, life goes on with a family of 5. I wish I could just nap every day, all day. Wouldn't that be nice if I could?
I was so worried that it would be a complete different reaction.
Things we're so hot after Mack was born, there was a lot of jealousy.
This time around - the boys are older, and we've completely avoided that same behavior.
Dark Grey (6 skeins) & Green (8 skeins). All of it is Mission Falls 136 Superwash Merino, which is a sport weight yarn. I have many sweater ideas for the boys.
A light grey (2 skeins) & purple (9 skeins - I could have sworn I'd taken 10, but must have miscounted).
Yarn Diet back on... let me tell you. But what's a knitter to do when Mission Falls is just not going to be available anymore when the yarn diet is over?
This yarn, was not a purchase. I received it in the mail today. I traded 3 skeins of the same yarn in Shocking Pink, for this Malabrigo Worsted in Autumn Forest. It's the exact colorway that the Pompom Bear Hat is knit up in, which I just love, and I see a few more of those hats in my knitting future. (Just need to find more time to knit).
This helped me get organized. I was inspired by that blog post. So I picked up this folder organizer from Walmart the last time I was there. I have categories like "Bills to pay", "To file", "Recipes", "Patterns", you know... stuff like that. This will keep the piles of paper off my desk. I'm trying to stay more organized and trying to eliminate the clutter in my life.
I also hung up 2 magnetic boards I recently got on the wall in my office. I think they're super cute, and they'll help me stay organized as well. 2011 is the year for organization. I ♥ it.
Today I went out with a friend to see the movie No String Attached. We met up with 2 girls that I went to high school with (that were in the grade below me) that also recently had babies. One has a son 29 days older than Quentin (Nov 1st) and the other exactly a month younger (Dec 30th). It was nice to see everyone. We're actually in the mist of organizing a playgroup, which will be nice. This time, the girls are not people I don't know (like it was with Mackenzie). Some of those girls turned out to be psychotic, and playgroup was not fun anymore after a while. One girl wanted playgroup at her house to show off her 8 strollers, 32 diapers bags, and thousands of kid toys. It was a show. I'm not interested in that. I want real people. And it looks like this new group, for babies Quentin's age, are all people I know, (with maybe the exception of one person) and I'm looking forward to it. It's also going to be nice to re-connect with old friends that I haven't see for a while, that are now on maternity leave with a baby Quentin's age. It's nice. Sorry to have switched subjects there... the movie... it was very cute. I really enjoyed it. Total chick flick. Exactly what the doctor called for.
Today’s Link Love:
- I love Leslie’s knitted hearts.
- I love this video. Hello Patrick Swayze!
- This is a pretty neat music video too.
- These job balls are a genius idea!
- 42 free (odd number, I know) Pampers Gifts to Grow Points: VMF776C7HMXXT4A.
Tuesday, January 25, 2011
Sean is 212 weeks old today.
I finally got the Tag Reader software downloaded onto my laptop, and we got the audio for Sean's 2 Tag Books he got for his birthday. What a neat toy. They never had such neat learning tools when I was a kid. It's amazing what technology has brought us.
Mack is my silly monkey.
He likes being silly and he likes having his picture taken.
He also likes "reviewing" the photos of himself on my camera.
Quentin has been more alert lately and I've been trying to stimulate him more with toys, and shapes and colors. Tonight, we played in front of a mirror for a bit. He was too funny "cooing" at himself.
I turn 30 this year (yikes!) and hubby and I started talking about my party. He won't do it as a surprise because he wants to make sure that everyone I would want there is indeed invited, so he will host something for me, but I have to help him out. I love planning/organizing... it's going to be fun. I just need to find somewhere to have it, etc. Oh, all the details are going to be so much fun (and that's why he married me, as I'm the planner/organizer). Glad he put me in charge. I still have time, my 30th is not until June. I actually am not really ready yet to think about my 30th. I even have my mother already in discussion with me about Quentin's 1st birthday. Are you kidding? He's only 8 weeks old! He was just born... but I guess there is a point, as my grandmother wants to be there, so if I make it a tad earlier than he actual birthday, then my grandmother is willing to go to Florida a week later than usual, (she goes for the winter) so she can be at Quentin's 1st birthday. I think I can handle that... but discussing it now? In January? For November? I'm not ready yet. It's a little too early.
Tonight for dinner I made a pot roast. I kind of winged it today, making it my own recipe. It actually came out quite good. I was impressed. I simply used ingredients we had in the house. I've made many pot roasts in my life, and now I know what works and what doesn't as far as ingredients. I had picked up 2 pot roast meat the other day from the grocery store. It was on sale for a ridiculously cheap price. Thinking about it now, I should have picked up more (to freeze). I have one more frozen in the freezer for next week or the week after - depending on how soon we feel we want to eat it again. I love my slow cooker. Toss in your ingredients, and 6-8 hours later (depending on your recipe) dinner is ready. Some days, it is just perfect. Whomever invented the slow cooker, rocks, in my opinion.
Monday, January 24, 2011
Loving my new little bird.
Love Picadillo in the new Weight Watchers Cookbook that I picked up at Costco recently. With a side of vegetables. It was really good, and very healthy. Jamie said it was very different. He'd eat it again, just not every week, type of thing. I'm not doing weight watchers myself, but the recipes are healthy, so I figured why not. Picadillo, a chicken dish, had the right amount of Granny Smith apple and cinnamon, just to my liking.
The boys and their bedtime buddies. Mack sleeps with Bunny & Brobee (from Yo Gabba Gabba). Sean sleeps with his Nunu (not pictured here) and rotates between some or all of those stuffed animals in the pile behind him. It's usually a zoo in his bed - his choice. Whatever keeps them in bed and asleep, I don't mind.
It's -25°C (-13°F) right now, which according to the weather network "feels like -32°C (-25.6°F)". This weather should be illegal. Even our furnace can’t keep up to heat the house (which is normal). We have it set for 73°F (22.7°C) and it’s at 64°F (17.7°C) forcing itself to work. BRRRRRRRRR.
Today’s Link Love:
- Love this receipt organizer tutorial.
- Love this image.
- Wearing a pair of glasses I haven’t worn in a while.
- Love this ring.
- I wish I had a girl. I love this fairy dress.
- My conversation with Mackenzie (no link, but love anyhow):
Robyn: "Why are you so cute?"
Mack: "I'm not cute, I'm Mackenzie".
Sunday, January 23, 2011
This morning, bright & early we had a 4th birthday party to attend. There were a lot of people at this birthday party, more than I've ever seen at a kid's birthday party in a while.
The boys had a great time playing int he gym, even though both boys were super shy when we got there. They are always like that for at least the first little bit when we get somewhere, and then they usually "warm up" and run off with their friends.
We have one more weekend of birthday parties (We've had one every weekend this month except for New Years weekend), and then I think we'll be party free for about a month or so, until Sean's friends in his class have some more birthdays. I'm not so good with these 9:30/9:45 am birthday parties... they're a little tough when you're sleep deprived with a newborn.
Pattern: Pompom Bear by Amanda Keeys (My Ravelry Link)
For: Photography Prop as it's too small for Quentin
Yarn: 0.38 skeins (82.1 yards) (38 grams) of Malabrigo Yarn Merino Worsted
Needles: US 6 - 4.0 mm
Timeline: January 21, 2011 - January 22, 2011.
Modifications: Knit pattern as written with smaller needle size than required.
Modifications: I used a 4.0 mm needle trying to get a size that would fit Quentin now, since he's small, however, I went down too many sizes (pattern requires size 5.5mm/ US 9). Since I went down in needle size, I should have not knit the hat to the length of the pattern for the smallest size, I should have ended it sooner, so the hat wouldn’t have been so “tall”. But since I’ll just use it as a photo prop, it’s just as cute. Will be knitting another one, in a larger needle size, to that Quentin has room to grow in it/wear it.
I found this video of Sean when he was a around 2 and a half. It was taken on June 16th, 2009. I stumbled upon this video when backing up my files on my home office computer (the power supply blew, so I'm backing it up before it goes in for a repair/upgrade). Sean's too cute here. Love it. (Please ignore my messy bedroom. That's the mess of a 1 year old and a 2 and a half year old).
The kids & I spent the afternoon/evening at my parents house. It was wicked cold in our house due to the crazy temperatures and I wanted to be by the fireplace at my parents house (since we are out of wood here). We stayed for dinner, and then headed home around the boys bedtime.
ps- Love you too Quentin.
Saturday, January 22, 2011
Tried on the hat on Quentin (which I did finish tonight), however, it just just fits him now.
Details on the FO tomorrow, when I can actually photograph it on Quentin.
Today we just chilled at home (I did leave the house to get some groceries though).
We had all these plans to go for a walk, until we saw the temperature outside.
It might look nice... but it was brutally cold.
So Quentin checked out a new mat he got.
Next time, now that he's almost 2 months old, will be tummy time.
Dinner was lovely swordfish. Oh, how I love a GOOD piece of fish. When I told Jamie that it wasn't on sale, and that I'll only buy it once in a while, he reminded me that had we not eaten that and decided to order in, it would have cost us triple the price just to order in. (We are not ordering in at all much anymore, now that we're on our diet - good for the health, excellent on the wallet.)
As I said before, pictures/info on my latest FO coming tomorrow. Other than that, I leave you with...
Friday, January 21, 2011
Jamie took the day off from work today, and after both of us sleeping in (he was also very kind to get dressed and take the older two boys to daycare), we watched the movie The Social Network. We both really enjoyed watching it. Funnily, I found myself checking in on Facebook a few times while watching the story of how Facebook became to be. My husband, who is not on facebook, still won't go on facebook. I thought maybe by watching the movie, he might change his mind, but nope. He still won't create an account.
I started a new project while watching the movie. I went down in needle size, hoping to make it fit Quentin well, but I have an odd hunch that it will either just just fit him or it'll be too tight. I will try it on him tomorrow. It would probably fit a newborn best, so if that's the case, I'll keep it (and finish it) for a newborn photography prop. I have plenty of yarn in just one skein to make 2 hats, I'm sure. I'll try the hat on Quentin tomorrow and see how it fits him. I'm already done 4" of the 6" that is required for this hat, so I won't frog it.
When I picked up the boys from daycare today, it wasn't so pleasant. Sean has been having behavior issues lately at meal time at daycare, not behaving with his food. (Food on the floor, food in another kid's hair, and today, he chewed up his cucumber and then put it on someone's plate). WHY!? He knows better than to play with food. I don't understand why he's doing this at school. He never plays with his food at home. Everyone is just telling me "It's cuz he's 4 years old'. But that's not an excuse. I didn't raise him this way. Why is he rebelling at daycare? And Mack has been very emotional lately at daycare, crying over little things for nothing. I try talking to him and telling him that he doesn't have to cry over every little thing, that he's a big boy now. Hopefully he will stop doing this. He might be crying, but I am so glad that the whining he used to do all the time, has stopped. I think I'd rather the crying over whining. Hopefully we'll have a good weekend with the kids, and no bad behavior. The time out chair doesn't seem to work for Sean anymore, so now when he's not behaving he has to go sit on his bed and think about what he's done. When he does misbehave at daycare they do take away privileges from the kids. He'll start losing privileges at home too - if he doesn't behave. I don't know what else to do to get his attention.
- Knit and Purl Mama
- I am a 30-something mom who knits, and takes pictures, a lot. I am a mother to 3 adorable boys, Sean (Dec 2006), Mackenzie (June 2008) & Quentin (Nov 2010). This is my journey through motherhood, photography, the books I read, life in general and knitting, of course. Oh, and other crafts too!
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